Ghana has joined the global community to commemorate the World Lupus Day on the theme: “Lupus Knows No Boundary.”
The World Lupus Day calls attention to the impact that Lupus has on people around the World.
The 14th Annual observance focuses on the need for improved patient healthcare services, increased research into the causes and a cure for Lupus, early diagnosis and treatment of Lupus and better epidemiological data on Lupus Globally.
Government, through the Ministry of Health has ratified the World Lupus Day proclamation on May 4, ahead of the celebration on May 10.
Mrs Emma Wilhelmina Halm Danso, the Executive Director of Oyemam Autoimmune Foundation in a statement copied the GNA said: “Lupus has been a mystery and a silent killer in our society for a long time, but this Foundation believes that the time to give it the needed attention is now.”
Lupus is an autoimmune disease, which develops when a person’s immune system, which defends the body against disease, becomes confused and identifies its healthy cells as foreign and consequently, attacks its own healthy cells.
The Day also serves to rally Lupus Organisations and people affected by the disease around the world for common purpose of bringing greater attention and resources to efforts to end the suffering caused by this disabling and potentially fatal autoimmune disease.
Everyday more than five million people worldwide struggle with the often debilitating health consequences of Lupus, a potentially fatal autoimmune disease, capable of damaging virtually any part of the body.
Lupus affects people in all part of the world, while some groups of people develop Lupus more frequently, than others.
Lupus develops in people of all ages, races, ethnicities and gender.
She said the disease manifests in many different ways, and it is very difficult for family and friends of victims and the society, at large, to really understand, what their loved ones go through.
Mrs Danso said “Oyemam Autoimmune Foundation would continue to advocate a National Autoimmune Commission to address the issues of autoimmunity in Ghana.”
She said the Foundation remained committed to inspiring hope through advocacy, education, awareness creation, counselling as well as fundraising, to provide medical assistance among others, for people with the disease.
She, therefore, called on policy makers, the Ministry of Health, Ministry of Gender, Children and Social Protection, corporate organisations, religious organisations, the media, and civil society groups to join in the efforts to inspire hope and bring relief to victims.
She said through this effort, much needed awareness would come about to give lupus the recognition and understanding it deserved and needed.
The Executive Director said with the celebration of the Day, it would help create awareness, raise a voice for people with lupus, and equip countries to better serve people with lupus globally.
Lupus is a serious, life-altering autoimmune disease that can affect any organ of the body. Lupus is a disease which remains under-recognised and under-appreciated
“Together with all we can make lupus a Ghanaian health priority and ensure that people with lupus in the country and Africa are diagnosed and treated effectively,” she added.
Mrs Danso, said Lupus was more pervasive and severe than people think, and has a devastating impact that the public doesn’t realize. In fact, research shows that a staggering two-thirds of the public knows little or nothing about lupus.